Treating chronic diseases such as obesity can involve intensive programs designed to change people’s diet, exercise, and other health behaviors. But a typical program, while packed with information and advice, may overlook a fundamental reality: people’s lives can contain a variety of barriers to behaviors that can improve their health.
“The assumption is that if people follow these programs, their health will improve,” says Emily Fu, PhD, MPH. “However, when you consider people’s real lives—busy schedules, different environments, mental health, social determinants of health, and life circumstances affect whether they can engage in recommended behaviors. For example, you might recommend that someone walk for 30 minutes a day, but if they live somewhere without sidewalks or where they don’t feel safe walking, that’s not realistic.”
Fu, a clinical psychologist and first year in the Primary care Investigators Training in Chronic disease & Health disparities (PITCH) Fellowship at the University of Chicago, studies how psychosocial factors and behaviors such as physical activity, sleep, and eating patterns influence long-term health. Key to effectively changing patient behaviors is tailoring interventions to their particular needs and circumstances. Yet while the importance of tailoring treatments is broadly accepted, it is neither a standardized practice nor well-understood. “People often say they’re tailoring interventions, especially in behavioral medicine, but they rarely define what that means,” she notes.
Now, in a paper recently published in Prevention Science, Fu proposes a new way to measure whether health interventions are truly tailored to individuals, and shows that personalization can make a measurable difference in how people engage with treatment.
Scoring how well programs are tailored
The new framework describes tailoring as a structured process in which providers assess a participant’s health behaviors, mental health, and social circumstances using validated questionnaires and discussions. Providers then work collaboratively with participants to create a plan that addresses the most relevant barriers.
Fu applied her new Observational Assessment Tool for Tailoring (OATT) to data from two trials of the Family Check-Up 4® Health intervention, an adaptation of the internationally-recognized Family Check-Up®, designed to support families to promote positive child outcomes. Families periodically met with a trained FCU4Health coordinator to develop strategies for improving health, and completed multiple surveys about family, parent, and child health behaviors, mental health, and social needs, including at the beginning of the intervention and a year later.
Using video recordings of feedback sessions with the FCU4Health coordinator and the parent, Fu and collaborators developed an observation-based scoring system to evaluate how well coordinators tailored their recommendations. Coders watched nearly 200 recorded sessions across two trials, examining whether coordinators accurately identified the family’s needs and collaborated with them to develop personalized goals.